Kaiser Family Foundation

Data Sources

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Several data sources on health are available for public use, particularly from the federal government. These data sources can be used to design your own study, delve further into a research question, or analyzed for a thesis or dissertation. The data sources presented here are primarily from government –sponsored surveys on health and the health care system. The data sources employ a wide range of methodologies and data collection practices as well as statistical software and are available in a variety of formats. We have provided basic summary information and links so that you can learn more about these data sources. To find out more details about analyzing these data sets, please contact the sponsoring organizations. While we have grouped data sets into the following categories to facilitate access, there is overlap between the categories and many provide state level information and are so noted.

Public Health/Vital Statistics

AIDS Info
This database from the NIH provides information on HIV/AIDS clinical trials and treatment.

Behavioral Risk Factor Surveillance System  (BRFSS)
The CDC’s BRFSS tracks individual’s health behaviors, such as smoking, alcohol use, sexual activity, exercise, receipt of screenings, and medication use.  Data are collected each year and are available at the national and state levels as far back as 1984.

CDC Wonder
Wide-ranging Online Data for Epidemiologic Research (WONDER) provides a single point of access to the vast range of data offered by CDC.  It includes reports and quantitative data on chronic diseases, health practice and prevention, communicable diseases, injuries, occupational health, environmental health and reference data.

Data Resource Center for Child & Adolescent Health (DRC)
The DRC includes over 100 standardized indicators from the two extensive state-based surveys on health and health care of children, youth, and families from The National Survey of Children's Health (NSCH) and The National Survey of Children with Special Health Care Needs (NS-CSHCN). It is searchable by age, race/ethnicity, income, health status and state.

Health System Measurement Project, ASPE
The Health System Measurement Project tracks government data on critical U.S. health system indicators. The website presents national trend data as well as detailed views broken out by population characteristics such as age, sex, income level, and insurance coverage status.

Healthcare Cost and Utilization Project (HCUP), AHRQ
HCUP is a project which produces health care databases and tools from various state and private data sources. The databases cover a wide range of topics, including rates of outpatient visits, ER visits, and hospitalizations.

HIV Cost and Services Utilization Study (HCSUS), AHRQ
This study examines cost and care for HIV based on a number of surveys which pull from a nationally representative sample of people. The study analyzes the costs, access, and quality of HIV care in the United States currently.

National Health Interview Survey (NHIS)
NHIS, sponsored by the CDC, is an annual survey that monitors trends in illness and disability, tracks progress toward achieving national health objectives, examines barriers to accessing and using appropriate health care, and evaluates Federal health programs.  It is a major source of national statistics on the health of the U.S. population. 

National Health and Nutrition Examination Survey (NHANES)
NHANES examines the diet practices of the U.S. population and the relationship between diet and health . The survey data are collected annually through in home questionnaires as well as physical exams.  Data are reported annually.

National Epidemiologic Survey on Alcohol and Related Conditions (NESARC)
Sponsored by the NIH, the NESARC collects information on alcohol and drug use, abuse and associated illnesses in the U.S. population.  National Vital Statistics System
The National Vital Statistics datasets are a collection of vital events such as births, deaths, marriages, divorces, and fetal deaths in all 50 states and 5 territories. 

National Immunization Survey (NIS)
Conducted by the CDC annually, NIS reports on immunization rates of children between the ages of 19 and 35 months nationally, in the states, and in 27 large urban areas for diptheria, polio, measles, tetanus, hepatitis B, and the flu.  The National Adult Immunization Survey reports on adult vaccinations for pneumonia and the flu.

National Cancer Institute Databases
NCI uses several databases to conduct national, state, and local surveillance of a number of cancers.

SEER Incidence 1973- 2001 Public-Use Data
The Surveillance, Epidemiology and End Result (SEER) Public-Use Data is the nation’s major tool for surveillance of cancer incidence, prevalence, and mortality.

SEER, Cancer Quering Systems  - (CANQUES)
This interface allows users to generate charts and tables on cancer statistics, using data from the SEER tracking system.

SEER Medicare Database
The SEER-Medicare database reflects the linkage of SEER data with Medicare data from CMS, producing detailed information about elderly persons with cancer.

Small Area Health Insurance Estimates
The Census Bureau's Small Area Health Insurance Estimates (SAHIE) program produces estimates of health insurance coverage for states and all counties. In August 2012, SAHIE released 2010 estimates of health insurance coverage by age, sex, race, Hispanic origin, and income categories at the state-level and by age, sex, and income categories at the county-level.

Health Care Financing and Delivery

State Health Facts, Kaiser Family Foundation
This website run by the Kaiser Family Foundation provides data stratified by state and topic. The database provides a broad range of statistics about health coverage, financing, utilization, and specific populations, including women, minorities, and people with disabilities.

Medical Expenditure Panel Survey (MEPS), AHRQ
MEPS provides data and surveys on medical expenditures.  Key components of the survey are the Household Component, which focuses on data received from household interviews, and the Insurance Component, which collects data from private and public insurers.

Health Data Tools and Statistics Library, Partners in Information Access for the Public Health Workforce
Run by the Partners in Information Access for the Public Health Workforce, this library provides links to health statistics and data resources. The list also contains other resources and organizations providing similar information.

HSR Information Central (HSRIC), National Information Center on Health Services Research and Health Care Technology (NICHSR).
This site run by NIH, provides information about data, tools, and statistics which discuss important health topics. The list includes governmental and non-governmental organizations, as well as, international organizations and general surveys and statistics.